Recent Posts
How is Matt today?
Matt is having an ok day.
Matt's current mood is slightly frustrated with my body.
Matt is feeling weak.
Matt's pain level* is 1 to 3.
This month's pain range is 1 to 6.
Blogging my homework – how AxSpa biologics work – Part 1 of n
I’m trying to learn everything I can about my condition. It’s time to read scientific papers and look up the… read more Blogging my homework – how AxSpa biologics work – Part 1 of n
I hate feeling so weak
Today all I have done is take apart two drawers, bag the scrap, and run the hover over the mess… read more I hate feeling so weak
Doing stuff
Thanks to the correct alignment of the stars or something, I have been doing stuff. This is a game changer… read more Doing stuff
Been going through an unforced flare-up due to someone else’s mistake
My immune system is trying to eat my spine. Yes, I have Ankylosing Spondylitis. I take Yuflyma – a biologic… read more Been going through an unforced flare-up due to someone else’s mistake
My sleep is out of sync
While, yes, I’m too tired to stay awake by about 6 or 7 pm, I am getting good sleep and… read more My sleep is out of sync
Recovering from a nasty one
I had a massive flare-up and migraine attack yesterday. It was so bad that I did not even feel like… read more Recovering from a nasty one
Over 13 hours of sleep
Last night, I went to bed in my new bed. I woke up over thirteen hours later. I feel well-rested… read more Over 13 hours of sleep
Just an hour or two of sleep
Here I am, tired all the time, and my body says, “Yeah, that’s enough sleep”. Man, that barely even counts… read more Just an hour or two of sleep
I’m just so tired all the time right now
Uh, how can I sleep this much and still be tired?
Today is a good day
Despite the heat, last night I got a good sleep and woke up feeling better than I have in a… read more Today is a good day
Stretching properly
I left it far too long to remember to stretch. When I was at the physio course, they showed us… read more Stretching properly
I slept a lot and now have pain
I slept through a lot of today, and now I am paying the price with head and neck pain. If… read more I slept a lot and now have pain
Feeling pretty good today
Yesterday was rough, but today feels pretty nice: Minimal pain, minimal stiffness, minimal fatigue. I might even go outside.
A long sleep and no pain – I call that a win!
I must have slept for about 12 hours today. After several nights of extra short sleeps, this long one felt… read more A long sleep and no pain – I call that a win!
Today has been a mixed bag
Yesterday, we said goodbye to my dad. The service was lovely, and I felt I knew Dad better than I… read more Today has been a mixed bag
I woke up feeling good and got to evict the mouse
I woke up at lunchtime (late night) feeling really good. Minimal stiffness and everything. Then I heard the mouse that… read more I woke up feeling good and got to evict the mouse
At last, the pain is over
I feel human again. Pain sucks.
Is this a flair up or a really bad migrain and why can’t I tell?
I feel rough today.
Man, that flair up sucked
Today, I was hit by a category 9 flair-up. Pain, headache, my blood pressure being dangerous (blood having trouble getting… read more Man, that flair up sucked
Why am I tired? My body isn’t.
Today all I did was browse the Internet, pop to the community allotment cabin and drink some tea (and chat),… read more Why am I tired? My body isn’t.
Found out I gained weight but at least I got some sleep at last
Saturday, I started very early. Like, 3 am early after another night of not all that much sleep. I weighed… read more Found out I gained weight but at least I got some sleep at last
Well, that’s not so good
Guess who has two thumbs and did not have much insulin left, so has just run out – this guy…. read more Well, that’s not so good
January 2026 has been a lot
I started the year ill, my dad died, my blood sugar level is out of control (due to medication interruptions),… read more January 2026 has been a lot


