Author: Matt

By which I mean I made half of a very large thing into a much smaller pile of scrap. Scrap… read more I did a DIY!!

There’s a web page all about the grant. The website says that their most common request is for raised beds… read more So, it turns out there are grants for disabled garden enthusiasts

First, I slept a bit too long catching up on sleep. So now I am permanently sleepy, with a migraine… read more I’m having a rough day

I’m trying to learn everything I can about my condition. It’s time to read scientific papers and look up the… read more Blogging my homework – how AxSpa biologics work – Part 1 of n

Today all I have done is take apart two drawers, bag the scrap, and run the hover over the mess… read more I hate feeling so weak

Thanks to the correct alignment of the stars or something, I have been doing stuff. This is a game changer… read more Doing stuff

My immune system is trying to eat my spine. Yes, I have Ankylosing Spondylitis. I take Yuflyma – a biologic… read more Been going through an unforced flare-up due to someone else’s mistake

While, yes, I’m too tired to stay awake by about 6 or 7 pm, I am getting good sleep and… read more My sleep is out of sync

I had a massive flare-up and migraine attack yesterday. It was so bad that I did not even feel like… read more Recovering from a nasty one

Last night, I went to bed in my new bed. I woke up over thirteen hours later. I feel well-rested… read more Over 13 hours of sleep

Here I am, tired all the time, and my body says, “Yeah, that’s enough sleep”. Man, that barely even counts… read more Just an hour or two of sleep

Uh, how can I sleep this much and still be tired?

Despite the heat, last night I got a good sleep and woke up feeling better than I have in a… read more Today is a good day

I left it far too long to remember to stretch. When I was at the physio course, they showed us… read more Stretching properly

I slept through a lot of today, and now I am paying the price with head and neck pain. If… read more I slept a lot and now have pain

Yesterday was rough, but today feels pretty nice: Minimal pain, minimal stiffness, minimal fatigue. I might even go outside.

I must have slept for about 12 hours today. After several nights of extra short sleeps, this long one felt… read more A long sleep and no pain – I call that a win!

Yesterday, we said goodbye to my dad. The service was lovely, and I felt I knew Dad better than I… read more Today has been a mixed bag

I woke up at lunchtime (late night) feeling really good. Minimal stiffness and everything. Then I heard the mouse that… read more I woke up feeling good and got to evict the mouse

I feel human again. Pain sucks.

I feel rough today.

Today, I was hit by a category 9 flair-up. Pain, headache, my blood pressure being dangerous (blood having trouble getting… read more Man, that flair up sucked

Today all I did was browse the Internet, pop to the community allotment cabin and drink some tea (and chat),… read more Why am I tired? My body isn’t.