Recent Posts
How is Matt today?
Matt is having an ok day.
Matt's current mood is dozy.
Matt is feeling sleepy.
Matt's pain level* is 1 to 2.
This month's pain range is 1 to 2.
So sleepy still
I got good sleep, but I am still nodding off like I’ve got narcolepsy or something. Fatigue sucks.
I’m struggling to stay awake; my fatigue levels are through the roof
This is what I get for arranging to do things early and staying up late. My body is forcing sleep… read more I’m struggling to stay awake; my fatigue levels are through the roof
I feel all the ages at once today
I woke up feeling a spritely 21, but now I feel like I’m 102. The energy I had has gone,… read more I feel all the ages at once today
Woke up in pain but feeling better now
I woke up in pain today. The worst I’ve had in a long while. A red day and no mistake…. read more Woke up in pain but feeling better now
For just a moment I had normal blood sugar levels
As I woke up, my blood sugar dropped to 9.x mmol/L – within the normal range, at last.. Then my… read more For just a moment I had normal blood sugar levels
5 minutes is my max… For now.
I try to have a stretch and do a very light workout while my tea is brewing. The longest I… read more 5 minutes is my max… For now.
Diabetes and AxSpA
I was browsing some scientific papers (as one does) and found a study linking AxSpA and diabetes. The meta-analysis and… read more Diabetes and AxSpA
I’m officially older; I feel the same
It is about 2am, which makes it my birthday. Don’t put candles on the cake – we’d have to call… read more I’m officially older; I feel the same
Give me a moment, I have pain
It is easing off, but for a moment there, I was tempted to take pain medication. I’m still feeling irritable… read more Give me a moment, I have pain
Self experiment: Leucine and arginine vs my blood sugar levels
I’ve been working on getting my blood sugar levels down. With mixed results. So I figured that I would look… read more Self experiment: Leucine and arginine vs my blood sugar levels
Almost; but, also, no
For one brief moment, I thought my blood sugar would get down to where it should be. I hit a… read more Almost; but, also, no
That’s odd: Weight measurement disparity (and good news)
I just popped on the scales, but did not get the same value as when I was weighed at the… read more That’s odd: Weight measurement disparity (and good news)
Man, am I tired
I’m nodding off here. I know why. I went to bed at 2am, slept for three hours and then woke… read more Man, am I tired
Might have lost wieght (and other news)
I was weighed at the GP’s today and came in at 128.2 KG, which is slightly under 20 stone 3… read more Might have lost wieght (and other news)
Today is a pretty good day
Yeah, I slept all day today because I stayed up all night binging a series. When I woke up (to… read more Today is a pretty good day
I’m feeling pretty good today
If I was having a flare, it may be over. I think it would be wise to take it relatively… read more I’m feeling pretty good today
AxSpA: What is a flair (up)?
AxSpA flares, it turns out, are not well understood. It is widely recognised that AxSpA sufferers have periods where symptoms… read more AxSpA: What is a flair (up)?
I’m off to a slow start
I ache more than normal today. Today I feel tired (fatigued), achy, and in some pain. I hope that today’s… read more I’m off to a slow start
Somehow, I gained 4lbs doing two weeks of intensive physio
I guess I snacked a bit hard during downtime. Still, it’s not all bad. I feel like my strength and… read more Somehow, I gained 4lbs doing two weeks of intensive physio
The fatigue is hitting me hard today
The fatigue is hitting me hard, which is somewhat to be expected. I could have gone to bed sooner after… read more The fatigue is hitting me hard today
Reblog: I had two weeks of AxSpA physio on the NHS
This post was first published on my social node. I arrived home from two weeks of AxSpA physio last night…. read more Reblog: I had two weeks of AxSpA physio on the NHS
Up early; long day
I’m up early. I have a long day ahead of me. Long week too, if I’m honest. I’d love some… read more Up early; long day
I keep biting my tongue – so annoying
I keep biting my own tongue. It’s annoying, slightly painful, and usually happens in my sleep. Does anyone know a… read more I keep biting my tongue – so annoying
Feeling the after effects
This week I was quite active (for me). I went to a few nice places, touched some grass, and took… read more Feeling the after effects


